On Mother’s Day 2001 Henny Beaumont gave birth to her third child. For the first four hours, her baby seemed no different from her two other little girls.
When the registrar told Henny and her husband that their daughter might have Down’s Syndrome, she thought that her life was over. How would she be able to look after this baby, who might die, and manage her other two children at the same time? How could this weak little baby, who needed so much more from Henny than her other two children, provoke such feelings of hatred and resentment? And how would she learn to love her? If she can’t trust her own reactions to Beth, how could she expect other people to overcome their prejudices and ignorance about her condition?
Hole in the Heart is a moving, funny, ironic and refreshingly honest look at living with a child who has special needs. Henny’s remarkable journey speaks not only to parents who have had a similar experience and the medical and care professionals who try to help them, but to every one of us who feels anxiety about our children – wondering whether they are achieving enough, whether we do enough for them, and whether we love them enough.
As the PE teacher asks: ‘Who’s really got the special needs here?’
Louise Bryant, Journal of Reproductive and Infant Psychology10 July 2017
This is a wonderful book for anyone looking for a better understanding of the needs of parents of children with Down’s syndrome. As a teaching tool for midwives and clinicians, the book would be highly effective in generating discussion about issues such as prenatal testing, delivering a diagnosis of Down’s syndrome, and attitudes towards learning disability in society.
Publishers Weekly30 January 2017
Baby Beth is born with an atrial septal defect—a literal hole in her heart—and her arrival brings not joy but urgent fear and alarm to her parents, compounded when she is diagnosed with Down Syndrome. Beaumont’s graphic memoir of her child and family digs unsparingly into uncertainty and despondency, resentment and acceptance. It portrays a complicated issue with compassion, deftly joining pictures and dialogue to give intense awareness of the lives portrayed. Beaumont opens herself and her inner thoughts with a painful immediacy through unspoken dread and anger expressed through thought balloons and remarkable visual symbolism. A shopping street literally closes inward to imprison her; an unsympathetic schoolmaster falls asleep on Henny’s protests, using the word balloon as an actual pillow. This harrowing and uplifting graphic memoir speaks to the families that include people with Down's Syndrome, each page lovingly saturated with humanity.View source
Foreword1 September 2016
Hole in the Heart: Bringing Up Beth, part of Penn State’s Graphic Medicine series, is artist Henny Beaumont’s brutally honest, and ultimately uplifting, account of raising a daughter with Down syndrome.
“Hole in the heart” refers to a common heart abnormality in children with Down syndrome, one which Beth, Beaumont’s daughter, has surgery to correct. But the title also refers to the battle for Beaumont and her husband to truly understand and embrace their daughter as she is; from the beginning, they often attempt to ignore or work around Beth’s limited abilities, while experiencing a gamut of emotions: guilt and sadness, hope and frustration, and, eventually, acceptance and love.
Beaumont has an MA in fine art and printmaking, and she transitions that experience to sequential art particularly effectively. The narrative flows easily, and when Beaumont chooses to slow it down, the results are gut-wrenching, as with an imaginary “visit” from Beaumont’s 15-years-older self, as the elder woman tries to impart perspective and patience to the younger one. The facial expressions of Beaumont’s characters show everything from sympathy to embarrassment to condescension, as Beaumont and her husband struggle to make good choices for Beth regarding schools, activities, and friends.
Hole in the Heart is a deeply affecting graphic novel that will certainly light a path, if not the only path, for other parents of children with Down syndrome. But it might be even more important for those with no experience of Down syndrome, to help gain an understanding of how the genetic disorder affects not just the child, but the child’s entire family. No matter the audience, the book’s message is universal.View source
Pamreader16 May 2016
I came home last Thursday evening to find this graphic novel in a package on the mat. When I picked up the parcel I was curious, I knew it was a book but thought I was too tired to read it and then I opened up the parcel. As soon as Beth’s little face looked up at me I forgot everything else, sat down, turned to the first page and didn’t stop reading until I reached the end. At which point I sobbed. This graphic novel is one of the most beautiful expressions of love I’ve ever read... I’d like to say a huge thank you to Henny for creating this incredibly emotive work of art, as there is much that needs to be said within these pages that I think many people will thank her for.View source
The Bookseller17 March 2016
Arresting, affecting, occasionally enraging but always deeply beautiful. A core title in the growing genre of Graphic Medicine.
Robert Yates, Consultant Cardiologist, Great Ormond Street Hospital for Children3 March 2016
It has made me embarrassed for how we break this kind of news to you. It has made me cry for all the anguish you have felt. It has made me hopeful for what Beth has achieved. This is essential reading for every paediatrician in training.